Wednesday, July 19, 2017


Dom is having a pretty rough way to go during this treatment.  Actually, Thalidomide was like a walk in the park compared to Velcade, Revlimid and Dex.

His blood pressure is all over the place.  He’s been on blood pressure medication for many years.  Our family doctor took him off of it while he’s going through this.

A typical morning:

Gets out of bed at 8 am.  While watching television, sitting on the couch, his blood pressure is 130/80.  GREAT.

Gets hungry.  Walks with his cane 20 feet into the kitchen.  Grabs a bite to eat, then hobbles back to the couch.  Starts feeling woozy.  Blood pressure has dropped to 60/something.

An hour later, blood pressure returns to normal.

He cannot function with these fluctuations.  He’s also getting flashes of color in his peripheral vision from time to time.

I’m doing all of the driving.  We’re both very tired.  Drive into Bogalusa, LA every Monday for lab work.  Velcade injections in Slidell on Tuesdays and Fridays.  Drive into NOLA to see Dr. Safah at the Tulane Cancer Center every couple of months. Monthly infusion of Zometa.  Here’s a look at this month:

So, we're hanging in there and sure looking forward to finishing this treatment and get on with the transplant.

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