We went to the Tulane Cancer Center yesterday to visit Dr. Safah. She recommends that we continue with Darzalex, but add Pomalyst and Dex to the treatment.
https://www.myeloma.org/treatment/current-fda-approved-medications/pomalyst-pomalidomide
We just had a phone call from Celgene's liaison, Kroger. They're delivering the chemo (pill form) on Friday afternoon.
Daily for 21 days, then 7 days off.
Meeting with Dr. Calabresi in Slidell on Tuesday, and will probably start the Pomalyst on Wed.
As usual, we're extremely hopeful.
Thanks for the kind words and prayers!
Nan and Dom
Showing posts with label Slidell Cancer Center. Show all posts
Showing posts with label Slidell Cancer Center. Show all posts
Thursday, August 22, 2019
Thursday, June 20, 2019
We Had Quite the Morning
Hi there, gang.
We had quite the morning. We saw Dr. Mannina the Radiology Oncologist at 8:30.
He informed us that Dom had broken ribs on the right, new lesions on the left, and a large lesion on his right hip.
A year or so ago was when Dom had a Plasmacytoma on his right hip. That's when he fell out of an 8-year complete remission.
So, here's the plan:
We go in Tuesday afternoon to get measured for a contraption that will hold Dom's arms over his head.
He'll get about 30-minute sessions when they're ready to get started. Dr. Mannina is going to blast the hip, and "graze" both sides of his ribcage so as not to affect any internal organs.
He sent us downstairs for Dom's 8th Darzalex infusion.
When we arrived at the infusion center, the gang had Dom all set up in his favorite "corner office". A lot of room and not sitting on top of anybody.
The volunteer already had our Diet Cokes, candy bar, pillow and blanket waiting for him. This guy, Richard is a DOLL. His wife is currently getting treatment for Breast Cancer, so he knows all too much about the ups and downs of treatment.
Our nurse cleaned his port and started the steroid infusion.
Brian, our favorite nurse from Dr. Calabresi office next door came running in... "STOP STOP!".
After consulting each other, the 2 doctors didn't want any Darzalex in his system for next week.
Sooooo... Fitting on Tuesday, then 10 Radiation Treatments, THEN back on the Darzalex.
As you guys all know, the Radiation works wonders for pain, so we're happy to get started.
ONE THING AFTER ANOTHER. *groaning*
We had quite the morning. We saw Dr. Mannina the Radiology Oncologist at 8:30.
He informed us that Dom had broken ribs on the right, new lesions on the left, and a large lesion on his right hip.
A year or so ago was when Dom had a Plasmacytoma on his right hip. That's when he fell out of an 8-year complete remission.
So, here's the plan:
We go in Tuesday afternoon to get measured for a contraption that will hold Dom's arms over his head.
He'll get about 30-minute sessions when they're ready to get started. Dr. Mannina is going to blast the hip, and "graze" both sides of his ribcage so as not to affect any internal organs.
He sent us downstairs for Dom's 8th Darzalex infusion.
When we arrived at the infusion center, the gang had Dom all set up in his favorite "corner office". A lot of room and not sitting on top of anybody.
The volunteer already had our Diet Cokes, candy bar, pillow and blanket waiting for him. This guy, Richard is a DOLL. His wife is currently getting treatment for Breast Cancer, so he knows all too much about the ups and downs of treatment.
Our nurse cleaned his port and started the steroid infusion.
Brian, our favorite nurse from Dr. Calabresi office next door came running in... "STOP STOP!".
After consulting each other, the 2 doctors didn't want any Darzalex in his system for next week.
Sooooo... Fitting on Tuesday, then 10 Radiation Treatments, THEN back on the Darzalex.
As you guys all know, the Radiation works wonders for pain, so we're happy to get started.
ONE THING AFTER ANOTHER. *groaning*
Monday, May 13, 2019
Dom's Progress with Darzalex
We went to the Slidell Cancer Center for Dom's 2nd Darzalex infusion on Thursday.
First, they gave him Tylenol and drips of Steroids, Pepsid and Benedryl.
Then they brought out the bag of Darzalex. It broke open! (Which contaminated it). There was no more Darzalex in the building. They would have had to drive an hour round-trip to get some, but it was already 11 am. That would have kept us there very late.
So, they apologized and asked us to return on Friday morning.
I'm happy to say that the Darzalex infusion was cut down to only 4 hours! We were at the Cancer Center for a total of 6 hours! We were tickled, as the week before was a 10 1/2 hour visit. During the infusion, the pharmacist stopped by. He checked his latest shipment of bags and found 4 or 5 defective bags. His new policy is to check the bags before mixing up the medicine.
Once again, Dom had NO ADVERSE reactions! We're extremely hopeful and feeling positive!
He's doing just great!
First, they gave him Tylenol and drips of Steroids, Pepsid and Benedryl.
Then they brought out the bag of Darzalex. It broke open! (Which contaminated it). There was no more Darzalex in the building. They would have had to drive an hour round-trip to get some, but it was already 11 am. That would have kept us there very late.
So, they apologized and asked us to return on Friday morning.
I'm happy to say that the Darzalex infusion was cut down to only 4 hours! We were at the Cancer Center for a total of 6 hours! We were tickled, as the week before was a 10 1/2 hour visit. During the infusion, the pharmacist stopped by. He checked his latest shipment of bags and found 4 or 5 defective bags. His new policy is to check the bags before mixing up the medicine.
Once again, Dom had NO ADVERSE reactions! We're extremely hopeful and feeling positive!
He's doing just great!
Friday, May 3, 2019
An Update on Our Patient
Hey, gang. It's been rough, but we're finally seeing light at the end of the tunnel.
He went through 10 radiation treatments on his C-3 Vertebrae. As warned, his throat closed up. He couldn't eat for a couple of days. Meanwhile, he was coughing and cracked or broke a couple of ribs.
Poor Dom stayed in bed for 2 days.
He's feeling MUCH better, thank God!
Yesterday was his first Darzalex infusion. Talk about a LONG DAY. We were at the Cancer Center for over 10 hours. Plus a couple of hours driving. *whew!*
I'm happy to say that his care team was delighted. He had NO SIDE EFFECTS. The next infusions will be quicker starting next Thursday.
He's up and about today and feeling GREAT!
Thank you for your continued prayers and good wishes.
He went through 10 radiation treatments on his C-3 Vertebrae. As warned, his throat closed up. He couldn't eat for a couple of days. Meanwhile, he was coughing and cracked or broke a couple of ribs.
Poor Dom stayed in bed for 2 days.
He's feeling MUCH better, thank God!
Yesterday was his first Darzalex infusion. Talk about a LONG DAY. We were at the Cancer Center for over 10 hours. Plus a couple of hours driving. *whew!*
I'm happy to say that his care team was delighted. He had NO SIDE EFFECTS. The next infusions will be quicker starting next Thursday.
He's up and about today and feeling GREAT!
Thank you for your continued prayers and good wishes.
Monday, April 8, 2019
And So it Continues. Dom Can't Catch a Break.
A few weeks ago, Dom had a full body CT Scan. His shoulder has been KILLING him.
Multiple Myeloma can cause soft spots in the bone called osteolytic lesions, which appear as holes on an X-ray. These osteolytic lesions are painful and can increase the risk of painful breaks or fractures. Myeloma can also cause nerve damage or pain when a tumor presses up against a nerve.
Sure enough, they found a lesion on his left shoulder blade.
Our team at the Slidell Cancer Center got the ball rolling quickly. It all starts tomorrow with an appointment with Handsome Dr. M. who is our Oncologist Radiologist.
He'll probably make a mold of Dom's shoulder blade and get started quickly.
Then Thursday, starting DARZALEX which isn't Chemotherapy, but rather a TARGETED Therapy that seeks out and destroys Myeloma cells. We have to be at the Cancer Center for 7am *groaning*, and they expect it will be an 8-hour infusion.
INFO ON DARZALEX HERE
So, rolling right along, gang. We're happy to get this crap started!
Multiple Myeloma can cause soft spots in the bone called osteolytic lesions, which appear as holes on an X-ray. These osteolytic lesions are painful and can increase the risk of painful breaks or fractures. Myeloma can also cause nerve damage or pain when a tumor presses up against a nerve.
Sure enough, they found a lesion on his left shoulder blade.
Our team at the Slidell Cancer Center got the ball rolling quickly. It all starts tomorrow with an appointment with Handsome Dr. M. who is our Oncologist Radiologist.
He'll probably make a mold of Dom's shoulder blade and get started quickly.
Then Thursday, starting DARZALEX which isn't Chemotherapy, but rather a TARGETED Therapy that seeks out and destroys Myeloma cells. We have to be at the Cancer Center for 7am *groaning*, and they expect it will be an 8-hour infusion.
INFO ON DARZALEX HERE
So, rolling right along, gang. We're happy to get this crap started!
Thursday, March 7, 2019
The Latest on Dom
These were Dom's latest numbers 2/27 at Tulane. The second set is from Slidell Cancer Center on 2/7. The numbers in parentheses are from November 2018.
WBC: 7.3 6.5 (8.3 three months ago)
RBC: 4.1 3.9 (3.71)
HTC: 38.7 39.4 (36.3)
PLATELETS: 170 154 (188)
KAPPA Light Chains: 10,5 11.4 (16.5)
LAMBDA Light Chains: 176.5 119.9 (36.4)
RATIO: 0.6 0.10 (0.45)
M-Spike: 1.7 1.3 (Not Observed)
Dr. Safah at the Tulane Cancer Center in NOLA saw us last Wednesday. She took blood. Had us follow up today with our Slidell Oncologist.
He's ordering a full body CT Scan with no contrast and a bone marrow biopsy. Hopefully next week.
Dom is a hurtin' little cowboy. Ribs, back, shoulder, neck. You name it.
So... after the CT results come in, they've decided to put Dom on DARZALEX. It's not chemo. It's an IMMUNOTHERAPY.
I joined a Facebook Group for Darzalex support, and the members have been SUPER helpful. Most of them rave about the drug!
So, we're feeling very positive.
The docs are laying the groundwork for insurance, then full-speed-ahead.
Thanks for the continued prayers and good vibes, gang.
WBC: 7.3 6.5 (8.3 three months ago)
RBC: 4.1 3.9 (3.71)
HTC: 38.7 39.4 (36.3)
PLATELETS: 170 154 (188)
KAPPA Light Chains: 10,5 11.4 (16.5)
LAMBDA Light Chains: 176.5 119.9 (36.4)
RATIO: 0.6 0.10 (0.45)
M-Spike: 1.7 1.3 (Not Observed)
Dr. Safah at the Tulane Cancer Center in NOLA saw us last Wednesday. She took blood. Had us follow up today with our Slidell Oncologist.
He's ordering a full body CT Scan with no contrast and a bone marrow biopsy. Hopefully next week.
Dom is a hurtin' little cowboy. Ribs, back, shoulder, neck. You name it.
So... after the CT results come in, they've decided to put Dom on DARZALEX. It's not chemo. It's an IMMUNOTHERAPY.
I joined a Facebook Group for Darzalex support, and the members have been SUPER helpful. Most of them rave about the drug!
So, we're feeling very positive.
The docs are laying the groundwork for insurance, then full-speed-ahead.
Thanks for the continued prayers and good vibes, gang.
Thursday, May 10, 2018
Dom's AMAZING Week
This week has been full of surprises.
On Monday he complained to his Slidell Cancer Center doctor about his neuropathy acting up again. It's slowly creeping up his leg. Also the backs of his hands.
Dr. C. canceled his chemo and asked us to go to see Dr. Safah at the Tulane Cancer Center in NOLA. (These 2 doctors work hand-in-hand, but Dr. Safah calls the shots. We've elected to get treatments in Slidell out of convenience)
We happily got an appointment with Dr. Safah on Tuesday morning.
She was puzzled about the neuropathy, saying that Kyprolis RARELY causes neuropathy. We told her that we didn't want him back in a wheelchair. She understood that.
I said, "Doc- his numbers are great. The radiation shrunk the lesion (Plasmacytoma) to 20% of its original size. Does he REALLY HAVE to have more chemo?"
She looked at his most recent numbers. No M-Spike. And much to our delight gave him the summer off of chemo. She did another M-Spike test and wants us to have another in 3 months. Just keeping an eye on it.
(The only reason that he was back on chemo was that solitary plasmacytoma on his left hip)
So, we're hopeful that it'll be another 8 years of remission and that no rogue cancer cells create problems for him.
That was our Christine's last day here. She had been carting us around in her rental car. We thought we'd go to one of our favorite joints, Crossroads Seafood and Grill, on the way home.
Dom had gotten a fried pork chop there about a year ago. He said, oh wouldn't it be great if they had a pork chop lunch special?
We arrive. We walk in. LUNCH SPECIAL: Fried Pork Chops!
We told the owner our wonderful news before being seated.
Had a delicious meal. When we got the check, it was for ZERO. The owner picked up the tab. She's done that now THRICE. What a doll!
So... it was a VERY GOOD DAY.
That night, I found out that I had $100+ in unclaimed dividends sitting in Louisiana. WOW!
The stars were aligned!
On Monday he complained to his Slidell Cancer Center doctor about his neuropathy acting up again. It's slowly creeping up his leg. Also the backs of his hands.
Dr. C. canceled his chemo and asked us to go to see Dr. Safah at the Tulane Cancer Center in NOLA. (These 2 doctors work hand-in-hand, but Dr. Safah calls the shots. We've elected to get treatments in Slidell out of convenience)
We happily got an appointment with Dr. Safah on Tuesday morning.
She was puzzled about the neuropathy, saying that Kyprolis RARELY causes neuropathy. We told her that we didn't want him back in a wheelchair. She understood that.
I said, "Doc- his numbers are great. The radiation shrunk the lesion (Plasmacytoma) to 20% of its original size. Does he REALLY HAVE to have more chemo?"
She looked at his most recent numbers. No M-Spike. And much to our delight gave him the summer off of chemo. She did another M-Spike test and wants us to have another in 3 months. Just keeping an eye on it.
(The only reason that he was back on chemo was that solitary plasmacytoma on his left hip)
So, we're hopeful that it'll be another 8 years of remission and that no rogue cancer cells create problems for him.
That was our Christine's last day here. She had been carting us around in her rental car. We thought we'd go to one of our favorite joints, Crossroads Seafood and Grill, on the way home.
Dom had gotten a fried pork chop there about a year ago. He said, oh wouldn't it be great if they had a pork chop lunch special?
We arrive. We walk in. LUNCH SPECIAL: Fried Pork Chops!
We told the owner our wonderful news before being seated.
Had a delicious meal. When we got the check, it was for ZERO. The owner picked up the tab. She's done that now THRICE. What a doll!
So... it was a VERY GOOD DAY.
That night, I found out that I had $100+ in unclaimed dividends sitting in Louisiana. WOW!
The stars were aligned!
Thursday, March 8, 2018
An Update on our Patient
We had to drive into NOLA for a visit with Dr. Safah at the Tulane Cancer Center.
Over the summer, his blood pressure dropped dramatically from the Velcade and Revlimid. They took him off of his blood pressure medications.
All was well for months.
Flash forward to yesterday. It was SKY HIGH. Again at Tulane today it was around 180 over something. An hour later it was 160 over something.
So, Dr. Safah wants to get his blood pressure normal before any new chemo.
We have an appt. with our family doctor tomorrow morning, then a meeting with our Slidell Oncologist shortly after.
Once again, Dr. Safah is calling the shots. We go to Slidell for treatment out of convenience. The new plan is Kyprolis and Dex.
Once his blood pressure is normalized, they'll begin giving him infusions of KYPROLIS:
KYPROLIS Info HERE
He'll be taking that along with Dex.
Wish us luck!
Over the summer, his blood pressure dropped dramatically from the Velcade and Revlimid. They took him off of his blood pressure medications.
All was well for months.
Flash forward to yesterday. It was SKY HIGH. Again at Tulane today it was around 180 over something. An hour later it was 160 over something.
So, Dr. Safah wants to get his blood pressure normal before any new chemo.
We have an appt. with our family doctor tomorrow morning, then a meeting with our Slidell Oncologist shortly after.
Once again, Dr. Safah is calling the shots. We go to Slidell for treatment out of convenience. The new plan is Kyprolis and Dex.
Once his blood pressure is normalized, they'll begin giving him infusions of KYPROLIS:
KYPROLIS Info HERE
He'll be taking that along with Dex.
Wish us luck!
Thursday, January 25, 2018
And, So it Continues......New Lesions But with Zero M-Spike!
We went to Tulane yesterday. It was one of those "good news - bad news" things.
Dr. Safah said that he had ZERO M-SPIKE. That he was in remission after just a couple of rounds of chemo months ago.
BUT-
He's got a new lesion on his "good" hip.
She wants us to get radiation in Slidell, continue Physical Therapy, and then return to her in a few weeks.
She wants to start him on KYPROLIS® (carfilzomib) as soon as he's done with radiation for pain. Doesn't think that it will cripple him like Velcade/Revlimid did.
This makes absolutely NO SENSE to us. His blood is clean, but these Plasmacytomas keep popping up?????
So, we met with our Slidell Cancer Center Radiologist, Dr. Mannina today. We LOVE the guy. He was zapping Dom's other hip last Spring/Summer.
We're headed back on Monday morning for measurements, etc. and will begin 10 radiation treatments over 2 weeks on BOTH hips.
Anyway, gang.... our heads are spinning. We're on a new journey. Please say a prayer.
Dr. Safah said that he had ZERO M-SPIKE. That he was in remission after just a couple of rounds of chemo months ago.
BUT-
He's got a new lesion on his "good" hip.
She wants us to get radiation in Slidell, continue Physical Therapy, and then return to her in a few weeks.
She wants to start him on KYPROLIS® (carfilzomib) as soon as he's done with radiation for pain. Doesn't think that it will cripple him like Velcade/Revlimid did.
This makes absolutely NO SENSE to us. His blood is clean, but these Plasmacytomas keep popping up?????
So, we met with our Slidell Cancer Center Radiologist, Dr. Mannina today. We LOVE the guy. He was zapping Dom's other hip last Spring/Summer.
We're headed back on Monday morning for measurements, etc. and will begin 10 radiation treatments over 2 weeks on BOTH hips.
Anyway, gang.... our heads are spinning. We're on a new journey. Please say a prayer.
Thursday, September 21, 2017
A Busy Few Weeks- Hanging in There!
Hi gang-
Dom is just finishing up his 3rd week of Physical Therapy. We love the entire team and are hopeful that he'll strengthen. https://www.facebook.com/Therapeutic-Concepts-1408438372782051/?rf=230666430277319
Each visit (3 times a week), they're introducing new exercises and he's outdoing himself. The man is driven!
We had a busy day yesterday. Slidell Oncologist at 10:30. A long lunch at the great Mexican joint next door. They back to the Cancer Center for a Zometa drip. His hip is killing him today, so the stuff is "doing it's thing", happily. Our last stop was Physical Therapy, which went well.
Our Slidell Oncologist has referred Dom to a well-known Neurologist in Lacombe, LA. We have an appointment on Monday morning. We're hopeful that this guy will figure something out. http://www.northlakeneuro.net/
Dom is still in a wheelchair and gets around with a walker with the help of his therapists.
We're headed to Tulane during the first week of October.
Dom is just finishing up his 3rd week of Physical Therapy. We love the entire team and are hopeful that he'll strengthen. https://www.facebook.com/Therapeutic-Concepts-1408438372782051/?rf=230666430277319
Each visit (3 times a week), they're introducing new exercises and he's outdoing himself. The man is driven!
We had a busy day yesterday. Slidell Oncologist at 10:30. A long lunch at the great Mexican joint next door. They back to the Cancer Center for a Zometa drip. His hip is killing him today, so the stuff is "doing it's thing", happily. Our last stop was Physical Therapy, which went well.
Our Slidell Oncologist has referred Dom to a well-known Neurologist in Lacombe, LA. We have an appointment on Monday morning. We're hopeful that this guy will figure something out. http://www.northlakeneuro.net/
Dom is still in a wheelchair and gets around with a walker with the help of his therapists.
We're headed to Tulane during the first week of October.
Thursday, August 3, 2017
MRI.....AB FAB News!
I just got a call from the Slidell Cancer Center....
NO NEW LESION!
The pain in his right hip is probably a pinched nerve.
The LEFT hip has improved! (Maybe the Zometa is working already)
Music to our ears!
(Our patient has been in bed all day, but hoping he'll perk up in the morning.)
Thanks for the continued prayers, gang!
NO NEW LESION!
The pain in his right hip is probably a pinched nerve.
The LEFT hip has improved! (Maybe the Zometa is working already)
Music to our ears!
(Our patient has been in bed all day, but hoping he'll perk up in the morning.)
Thanks for the continued prayers, gang!
Wednesday, August 2, 2017
A Dom Update - Bed during the weekend, then back at it.
He had been feeling very weak and woozy since last week. He basically spent the weekend in bed.
On Monday, we headed into Bogalusa to have his weekly blood work done. I dropped him off at the door to shop and returned to find out that he couldn’t make the walk to the lab. They kindly gave him a wheelchair.
Yesterday was a FULL day. He had an MRI appointment at 11:30 at the hospital. Then, the Cancer Center nurse asked us to come right over. She had looked at his blood work to see that his Potassium was way down.
So, he got his Velcade injection, followed by a 2-hour infusion of Potassium and liquids. (Saline) Our Oncologist was on vacation (again), so one of his associates gave him a prescription for daily Potassium supplements.
He felt GREAT last night.
He felt GREAT this morning. Got out of bed, made his own breakfast, watched television, then got up, started to walk and got dizzy.
There’s no doubt that his blood pressure dropped and he was too much in a hurry to get moving. So.... he’s promised me that he will sit for awhile. Slowly stand for awhile. THEN walk.
So, this is all very frustrating, but we seem to be getting somewhere with the Potassium and Fluid infusions. And happily, there seems to be a better communication with his health care team.
Back to the Cancer Center on Friday morning for Velcade, then he's got the next week OFF. YAY!
On Monday, we headed into Bogalusa to have his weekly blood work done. I dropped him off at the door to shop and returned to find out that he couldn’t make the walk to the lab. They kindly gave him a wheelchair.
Yesterday was a FULL day. He had an MRI appointment at 11:30 at the hospital. Then, the Cancer Center nurse asked us to come right over. She had looked at his blood work to see that his Potassium was way down.
So, he got his Velcade injection, followed by a 2-hour infusion of Potassium and liquids. (Saline) Our Oncologist was on vacation (again), so one of his associates gave him a prescription for daily Potassium supplements.
He felt GREAT last night.
He felt GREAT this morning. Got out of bed, made his own breakfast, watched television, then got up, started to walk and got dizzy.
There’s no doubt that his blood pressure dropped and he was too much in a hurry to get moving. So.... he’s promised me that he will sit for awhile. Slowly stand for awhile. THEN walk.
So, this is all very frustrating, but we seem to be getting somewhere with the Potassium and Fluid infusions. And happily, there seems to be a better communication with his health care team.
Back to the Cancer Center on Friday morning for Velcade, then he's got the next week OFF. YAY!
Saturday, July 29, 2017
Update on Dom
It’s been a rough week.
Dom’s 3 1/2 inch lesion is on his LEFT HIP.
This week, his RIGHT HIP started killing him.
I sent an email to our liaison nurse at the Slidell Cancer Center on Wednesday afternoon to request an MRI. (Which is how they found his hip lesion)
She didn’t bother to return my email or call us.
Went to Slidell for his chemo on Friday. Dom went into our doctor’s office to bitch.
Doc was OFF for the day. Apparently, there were NO doctors on Friday.
He said that he wanted an MRI- now!
Finally, one of the nurses told him to go the Emergency Room. They would be expecting him.
Sure enough, they got him into a room quickly.
TWO HOURS LATER, the ER doc said that they had FINALLY got a hold of his Oncologist. Said that there was no need for an MRI until next week. The ER doc apologized for the lack of communication. (He was a sweet guy- loved him)
It turns out that our liaison did, in fact, see the email. Apparently ignored it.
When we Igot home, there was a phone message from her, asking how it went today. You think I’m going to return her call? NO EFFING WAY.
So, MRI is scheduled for Tuesday.
We switched from NOLA to Slidell for convenience. We're having 2nd thoughts. Going to see our Tulane Oncologist on August 31st. She'll decide if he's ready for the SCT after doing a bone marrow biopsy and check his M-Spike.
Dom’s 3 1/2 inch lesion is on his LEFT HIP.
This week, his RIGHT HIP started killing him.
I sent an email to our liaison nurse at the Slidell Cancer Center on Wednesday afternoon to request an MRI. (Which is how they found his hip lesion)
She didn’t bother to return my email or call us.
Went to Slidell for his chemo on Friday. Dom went into our doctor’s office to bitch.
Doc was OFF for the day. Apparently, there were NO doctors on Friday.
He said that he wanted an MRI- now!
Finally, one of the nurses told him to go the Emergency Room. They would be expecting him.
Sure enough, they got him into a room quickly.
TWO HOURS LATER, the ER doc said that they had FINALLY got a hold of his Oncologist. Said that there was no need for an MRI until next week. The ER doc apologized for the lack of communication. (He was a sweet guy- loved him)
It turns out that our liaison did, in fact, see the email. Apparently ignored it.
When we Igot home, there was a phone message from her, asking how it went today. You think I’m going to return her call? NO EFFING WAY.
So, MRI is scheduled for Tuesday.
We switched from NOLA to Slidell for convenience. We're having 2nd thoughts. Going to see our Tulane Oncologist on August 31st. She'll decide if he's ready for the SCT after doing a bone marrow biopsy and check his M-Spike.
Tuesday, June 20, 2017
All is GREAT Here!
Dom woke up, took his Revlimid and Steroids (Dex), and we drove into Slidell. Got his Velcade injection and his drip of Zometa.... very quick... in and out in no time at all.
Our patient feels better than he has for a week. Using 2 crutches today, but getting around well. Even his voice sounds chipper. Thank God. (he does the steroids on Tuesdays.... I wonder if that has something to do with it????)
We have 2 days off. Back to Slidell Cancer Center on Friday for Velcade shot, then off of chemo for a week.
Daughter Christine is flying in on Saturday. YAY! Fun, fun gal!
Our A/C guy was here for about 3 1/2 hours yesterday. The old fella that wired this house had Alzheimer's. Apparently, he was confused with the air conditioning. Our guy got it working and will return tomorrow to finish the job.
SERENITY NOW! - Frank Costanza (Seinfeld)
Our patient feels better than he has for a week. Using 2 crutches today, but getting around well. Even his voice sounds chipper. Thank God. (he does the steroids on Tuesdays.... I wonder if that has something to do with it????)
We have 2 days off. Back to Slidell Cancer Center on Friday for Velcade shot, then off of chemo for a week.
Daughter Christine is flying in on Saturday. YAY! Fun, fun gal!
Our A/C guy was here for about 3 1/2 hours yesterday. The old fella that wired this house had Alzheimer's. Apparently, he was confused with the air conditioning. Our guy got it working and will return tomorrow to finish the job.
SERENITY NOW! - Frank Costanza (Seinfeld)
Wednesday, May 17, 2017
Our Progress Report- So Far So Good
We've had a busy couple of weeks. Today Dom completed his 5th radiation treatment on his left hip. Only 5 more to go.
We're meeting with a gal at the Slidell Cancer Center on Monday to discuss medications and insurance.
His last radiation treatment will be next Tuesday, then we have an entire, much needed, week off.
Meeting with his Slidell Oncologist on June 1st, where we'll learn about his Chemotherapy schedule.
After radiation this morning, we dropped off the oncologist's letter stating that his cancer had returned to our local Veterans Services Officer. She's a doll...the same gal that took care of us in '08. She felt confident that he'll receive 100% disability from the VA. They'll be in touch to set up an appointment with one of their doctors. I just hope that it happens AFTER we get more information on June 1st.
So- Things are happening very quickly. Our patient looks and feels great, although the radiation is starting to bother his hip. (nerves have become effected from the radiation)
Thank you for your continued prayers!
We're meeting with a gal at the Slidell Cancer Center on Monday to discuss medications and insurance.
His last radiation treatment will be next Tuesday, then we have an entire, much needed, week off.
Meeting with his Slidell Oncologist on June 1st, where we'll learn about his Chemotherapy schedule.
After radiation this morning, we dropped off the oncologist's letter stating that his cancer had returned to our local Veterans Services Officer. She's a doll...the same gal that took care of us in '08. She felt confident that he'll receive 100% disability from the VA. They'll be in touch to set up an appointment with one of their doctors. I just hope that it happens AFTER we get more information on June 1st.
So- Things are happening very quickly. Our patient looks and feels great, although the radiation is starting to bother his hip. (nerves have become effected from the radiation)
Thank you for your continued prayers!
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